Just checkin in

Hope all is well for everyone.
Thanksgiving is just 2 days away. This year I don't have to cook ANYTHING!!. We are going to my dad's and I was told I didn't need to bring a thing. How nice. I am meeting my step brother and sister for the first time. WOW! I will let you know how it goes.
I talked to Dr.Oro's office today and have my tethered cord surgery scheduled for March. On the 17th I have a lumbar and brain MRI,on the 18th(my 10 year wedding anniversary) I see Dr.Oro and surgery is the 19th. I will be the first one of the day so I hope the doc has had his coffee and is wide awake. All I really know is that I have to lay flat for 24 hours after surgery. Hopefully recovery will be fast. I'm not sure I will have a nanny position to return too. They are very busy people and have become very dependent on me. Maybe I can get my Herbalife business off the ground and not need to worry about it.
Speaking of Herbalife~Michael went to his diabetes doctor today~his dosage on one medication has gone down and he will probably be off all the med's in the next 3 months. Praise the Lord!!!! He has lost 13 pounds and 21 inches. I have lost 19 pounds and 18 inches.Hopefully my weight loss will help my recovery.
Have a super Thanksgiving,
Lolo

did any one else see this

Last night on Mystery Diagnosis they showed a girl who suffered for years with stomach aches,headaches and low blood pressure. She finally found Chip's WACMA website and went to TCI where she was diagnosised with chiari and had surgery there.She has gone on to become a model. I thought it was pretty cool to finally see for myself that we chairians were getting some attention.
I have been doing pretty good lately. I have recently found a product~Herbalife~not only have I lost 13 pounds and 9 inches in the first week of using these products but my brain fog has lifted and although I still have the"pull" feeling in my head and neck I am finding that I am using my muscle relaxor alot less and I have some energy.Michael is also using some of Herbalife's products and he lost 6 pounds and 16 inches in the first week but more importantly for him as he is a diabetic~his numbers are going down and he is able to sleep through the night thanks to Nightworks~he suffered from leg cramps from poor cirrculation.He has been able to sleep the last week.Feel free to visit Herbalife.com if you are interested in anything let me know and I would be happy to help you.
It is really cold in my neck of the woods.How about where you are?
For those of you in the chiari world continue to lift up Chip's family.Chip passed away Thursday night awaiting a liver transplant. Very big loss for those of us who knew of all Chip has done in the world of chiari.He will be missed but I know he is in Heaven watching over each of us.
Blessings,
lolo

39 and can't spell

Did you all catch that last post heading where I spelled happy wrong???
Must be my age.

Happt birthday

HAPPY BIRTHDAY~ TO ME!!!!!!



Have a great pain free day every one.


Hugs,
Lolo

deep heat massage

Dr.Oro sent me a script for some PT. I need to find the time to look over insurance and figure out where to go.
I have decided that although I am not happy about having so much time off with out pay~it maybe a good thing for me to just have some time to rest and be off my feet.
I spoke with another chiarian yesterday and she has put together a support group for us chiarians in Missouri. We are going to be meeting in Jefferson city for lunch November 8th.I am very excited about this.Different things have happened since the decompression surgery and I feel like I have just maybe lost my way so I am looking forward to gettng back to my God and my chiari family and friends.
Michael and I are looking at doing a Herbalife program to maybe take off some weight. He is a diabetic so it is important for him and I am hoping taking off a few pounds would maybe give me more time before I just have to have the TC surgery.
Blessing to you all,
L

better

I am feeling better. Very tired but better.
Monday night that thing that happens to some of us once a month ~came to visit me and my back~OMG!!! It was awful.I think I got about 2 hours sleep.I ended up back on the vicodin for the first time since the decompression surgery.
I left work a little early yesterday and just came home and relaxed.Michael re-filled my prescription of Flexiril so I am praying for a good day. I think stress played a role in everything coming to a head Saturday. Although I enjoy my new job they didn't tell me that they would be out of town a week out of every month for the next 3 months and I would be off WITHOUT pay. I need an income people!!
Anyway,I am even dealing with that a little better now.
I called or shall I say I e-mailed Kim and Dr.Oro yesterday and just asked short of the tethered cord surgery what if anything I could do about the "pull" in my head and neck and the back pain. Kim e-mailed right back and said my file was just put on Dr.O's desk and she would get back with me by Friday. She said she knew I had been struggling for a long time.She was very nice.I will keep you posted on what they say.
Blessings,
Lolo

Not sure what is going on

I am having a really rough day.Very emontional.
I have had so many symptoms of my chiari come back this week and today it just came to a head and I can't seem to stop crying.
I almost feel like I need a babysitter this week and how funny is that ~ I am the baby sitter.
I had been doing good.I really enjoy my nanny job so I am kinda hoping that because I have been off this week and had so much down time that that maybe why things are going crazy.
My rapid heartbeat has been coming to visit about once a day,certainly not as often as it was before surgery but it is back for the first time in the 4 months since surgery.The brain fog is pretty bad,forgetfulness,desicion making,headache (3 headaches this week and not because rain is moving in)and it feels like my throat is swelling and there are pills or something stuck in there.
Trying to concentrate on re-reading this entry is awful. I can't describe these weird feelings.
Any way I just wanted to whine.
If any one reads this advice would be great.
Lolo